Epidermolysis Bullosa is a group of rare, life-threatening genetic disorders that affect the body’s largest organ—the skin. Most commonly diagnosed in children, EB results from a lack of vital proteins that bind the skin together. Without these proteins, the skin tears apart, blisters, and shears off, leading to severe pain, disfigurement, and internal and external wounds that may never heal. There is no cure today, but leading researchers believe that life-changing treatments and a cure are within reach. Let’s help!